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Towards a Common Semantic Representation of Informed Consent for Biobank Specimens

TitleTowards a Common Semantic Representation of Informed Consent for Biobank Specimens
Publication TypeConference Paper
Year of Publication2014
AuthorsManion, FJ, He, Y, Eisenhauer, E, Lin, Y, Karnovsky, A, Harris, MR
Conference NameInternational Conference on Biomedical Ontology
Date Published2014///
PublisherCEUR Workshop Proceedings
Abstract

Biospecimen-based research is rapidly growing in thepost genomic era, and includes the need to retrieve specimens from
distributed biobanks of various size and complexity in a fashion that
ethically preserves the expressed wishes of specimen donors as
represented by the informed consent process and its artifacts. This
paper briefly describes existing work along these lines, presents some challenges unique to biobanks, and presents our own work on an ontology of informed consent.

URLhttp://ceur-ws.org/Vol-1309/paper7.pdf
People: 
Frank Manion
University of Michigan Rogel Cancer Center at North Campus Research Complex
1600 Huron Parkway, Bldg 100, Rm 1004 
Mailing Address: 2800 Plymouth Rd, NCRC 100-1004
Ann Arbor, MI 48109-2800 
Ph. (734) 764-8848 Fax. (734) 615-0507

Research reported in this publication was supported by the National Cancer Institutes of
Health under Award Number P30CA046592. The content is solely the responsibility
of the authors and does not necessarily represent the official views of the
National Institutes of Health.

Research reported in this publication was supported by the National Cancer Institutes of
Health under Award Number P30CA046592 by the use of the following Cancer Center
Shared Resource(s): Biostatistics, Analytics & Bioinformatics; Flow Cytometry;
Transgenic Animal Models; Tissue and Molecular Pathology; Structure & Drug
Screening; Cell & Tissue Imaging; Experimental Irradiation; Preclinical
Imaging & Computational Analysis; Health Communications; Immune Monitoring;
Pharmacokinetics)

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