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Delivery of Internet-based cancer genetic counselling services to patients' homes: a feasibility study.

TitleDelivery of Internet-based cancer genetic counselling services to patients' homes: a feasibility study.
Publication TypeJournal Article
Year of Publication2011
AuthorsMeropol, NJ, Daly, MB, Vig, HS, Manion, FJ, Manne, SL, Mazar, C, Murphy, C, Solarino, N, Zubarev, V
JournalJ Telemed Telecare
Volume17
Issue1
Pagination36-40
Date Published2011
ISSN1758-1109
KeywordsAdult, Aged, Breast Neoplasms, Colonic Neoplasms, Feasibility Studies, Female, Genetic Counseling, Humans, Internet, Male, Middle Aged, Neoplasms, Ovarian Neoplasms, Patient Education as Topic, Patient Satisfaction, Questionnaires, Videoconferencing
Abstract

We examined the feasibility of home videoconferencing for providing cancer genetic education and risk information to people at risk. Adults with possible hereditary colon or breast and ovarian cancer syndromes were offered Internet-based counselling. Participants were sent web cameras and software to install on their home PCs. They watched a prerecorded educational video and then took part in a live counselling session with a genetic counsellor. A total of 31 participants took part in Internet counselling sessions. Satisfaction with counselling was high in all domains studied, including technical (mean 4.3 on a 1-5 scale), education (mean 4.7), communication (mean 4.8), psychosocial (mean 4.1) and overall (mean 4.2). Qualitative data identified technical aspects that could be improved. All participants reported that they would recommend Internet-based counselling to others. Internet-based genetic counselling is feasible and associated with a high level of satisfaction among participants.

DOI10.1258/jtt.2010.100116
Alternate JournalJ Telemed Telecare
PubMed ID21097566
PubMed Central IDPMC3263376
Grant ListP30 CA006927 / CA / NCI NIH HHS / United States
P30 CA006927 / CA / NCI NIH HHS / United States
P30 CA006927-49 / CA / NCI NIH HHS / United States
People: 
Frank Manion
University of Michigan Rogel Cancer Center at North Campus Research Complex
1600 Huron Parkway, Bldg 100, Rm 1004 
Mailing Address: 2800 Plymouth Rd, NCRC 100-1004
Ann Arbor, MI 48109-2800 

Research reported in this publication was supported by the National Cancer Institutes of
Health under Award Number P30CA046592. The content is solely the responsibility
of the authors and does not necessarily represent the official views of the
National Institutes of Health.

Research reported in this publication was supported by the National Cancer Institutes of
Health under Award Number P30CA046592 by the use of the following Cancer Center
Shared Resource(s): Biostatistics, Analytics & Bioinformatics; Flow Cytometry;
Transgenic Animal Models; Tissue and Molecular Pathology; Structure & Drug
Screening; Cell & Tissue Imaging; Experimental Irradiation; Preclinical
Imaging & Computational Analysis; Health Communications; Immune Monitoring;
Pharmacokinetics)

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