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Towards a Common Semantic Representation of Informed Consent for Biobank Specimens

TitleTowards a Common Semantic Representation of Informed Consent for Biobank Specimens
Publication TypeConference Paper
Year of Publication2014
AuthorsManion, FJ, He, Y, Eisenhauer, E, Lin, Y, Karnovsky, A, Harris, MR
Conference NameInternational Conference on Biomedical Ontology
Date Published2014///
PublisherCEUR Workshop Proceedings

Biospecimen-based research is rapidly growing in thepost genomic era, and includes the need to retrieve specimens from
distributed biobanks of various size and complexity in a fashion that
ethically preserves the expressed wishes of specimen donors as
represented by the informed consent process and its artifacts. This
paper briefly describes existing work along these lines, presents some challenges unique to biobanks, and presents our own work on an ontology of informed consent.

Frank Manion
University of Michigan Comprehensive Cancer Center at North Campus Reserach Complex
1600 Huron Parkway, Bldg 100, Rm 100 
Mailing Address: 2800 Plymouth Rd, NCRC 100-1004
Ann Arbor, MI 48109-2800 
Ph. (734) 764-8848 Fax. (734) 615-0517
Please acknowledge the Cancer Center Support Grant (P30 CA046592) when publishing manuscripts or abstracts that utilized the services of the University of Michigan's Comprehensive Cancer Center's Shared Resource: Cancer Informatics.
Suggested language: "Research reported in this [publication/press release] was supported by the National Cancer Institute of the National Institutes of Health under award number P30CA046592."

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