Title | Delivery of Internet-based cancer genetic counselling services to patients' homes: a feasibility study. |
Publication Type | Journal Article |
Year of Publication | 2011 |
Authors | Meropol, NJ, Daly, MB, Vig, HS, Manion, FJ, Manne, SL, Mazar, C, Murphy, C, Solarino, N, Zubarev, V |
Journal | J Telemed Telecare |
Volume | 17 |
Issue | 1 |
Pagination | 36-40 |
Date Published | 2011 |
ISSN | 1758-1109 |
Keywords | Adult, Aged, Breast Neoplasms, Colonic Neoplasms, Feasibility Studies, Female, Genetic Counseling, Humans, Internet, Male, Middle Aged, Neoplasms, Ovarian Neoplasms, Patient Education as Topic, Patient Satisfaction, Questionnaires, Videoconferencing |
Abstract | We examined the feasibility of home videoconferencing for providing cancer genetic education and risk information to people at risk. Adults with possible hereditary colon or breast and ovarian cancer syndromes were offered Internet-based counselling. Participants were sent web cameras and software to install on their home PCs. They watched a prerecorded educational video and then took part in a live counselling session with a genetic counsellor. A total of 31 participants took part in Internet counselling sessions. Satisfaction with counselling was high in all domains studied, including technical (mean 4.3 on a 1-5 scale), education (mean 4.7), communication (mean 4.8), psychosocial (mean 4.1) and overall (mean 4.2). Qualitative data identified technical aspects that could be improved. All participants reported that they would recommend Internet-based counselling to others. Internet-based genetic counselling is feasible and associated with a high level of satisfaction among participants. |
DOI | 10.1258/jtt.2010.100116 |
Alternate Journal | J Telemed Telecare |
PubMed ID | 21097566 |
PubMed Central ID | PMC3263376 |
Grant List | P30 CA006927 / CA / NCI NIH HHS / United States P30 CA006927 / CA / NCI NIH HHS / United States P30 CA006927-49 / CA / NCI NIH HHS / United States |
Research reported in this publication was supported by the National Cancer Institutes of
Health under Award Number P30CA046592. The content is solely the responsibility
of the authors and does not necessarily represent the official views of the
National Institutes of Health.
Research reported in this publication was supported by the National Cancer Institutes of
Health under Award Number P30CA046592 by the use of the following Cancer Center
Shared Resource(s): Biostatistics, Analytics & Bioinformatics; Flow Cytometry;
Transgenic Animal Models; Tissue and Molecular Pathology; Structure & Drug
Screening; Cell & Tissue Imaging; Experimental Irradiation; Preclinical
Imaging & Computational Analysis; Health Communications; Immune Monitoring;
Pharmacokinetics)
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